Kristin Morgan said: September 17, 2008 9:46 pm PST
I am so encouraged by your story. My son, Caleb, has also been diagnosed with Restrictive Cardiomyopathy. We are currently awaiting a heart transplant at Lucile Packard CHildrens Hospital in Palo Alto, Ca. God has given us specific scriptures that he is going to heal Calebs lungs do to the pulmonary hypertension that the heart condition has caused. Serenity's story gives me so much hope and has helped to strengthen my faith. Thank you so very much for posting her story and being open enough to share your journey. We are still at the beginning of our journey and I'm not quite sure where it will take us. We only found out about Caleb's heart condition this July. Though, he has had problems breathing, growing, and eating since he was born. The condition is just so rare, it took our pediatrician nearly two years to diagnose him. He is our promised child so I know God has a hand in this situation. Thank you again for sharing.